

4 And its inclusion, particularly based on an artistic participatory approach, could prove beneficial to identify both collective and unique responses in a population of interest.

3 In other words, how is this medical reality reconciled with the experiential component? The narrative element has indeed been suggested as an essential yet neglected dimension of data. Furthermore, while new technologies can dramatically improve our insight into the human body, with the most sophisticated imaging techniques or new technologies such as three-dimensional (3D) printing, they cannot exhaust its meaning. An interdisciplinary framework including the narrative element could thus potentially allow improvements, such as addressing lack of awareness or excessive anxieties and teasing out divergences between the patients’ health status and their expectations. As discussed in the literature on co-creation, the management (from the carer’s perspective) and self-management (from the patient’s perspective) of a condition rely on practical and moral choices that are profoundly unique, 2 and it has been advocated that a narrative approach could be illuminating with regards to adopting technological innovations to improve patients’ care. Unearthing narratives and ‘honouring the stories of illness’ 1 are essential for developing a holistic approach to medicine.
